The BOSS study means that your doctors will be asked to send some details about your child’s condition to the study team based at The University of Liverpool.
The information is routine information about your child’s diagnosis, x-ray findings and the treatments undertaken. No personal identifiable information will be sent to these researchers without your express consent.
We have created some information leaflets targeted at patients of different ages, and their parents, which you can view and download to discuss with them.
We hope that all children with a diagnosis of Perthes’ disease and slipped epiphysis will be put forward by their doctor. However, parents' groups have also told us that parents may like to be able to double-check that the research team has been notified of their child's diagnosis. If you wish to notify us of your child's diagnosis, we would be grateful if you could let us know your details via the link below.
The Perthes Association is the UK charity that is supporting the Perthes element of the BOSS study. The Perthes Association has a long track record of supporting families affected by Perthes’ disease, and regularly organises meetings of families affected. The BOSS study team is very grateful to the Perthes Association for their support.